Today's Topic: Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see?
Firstly I am so excited to participate in this years Diabetes Blog Week. I am going camping on the long weekend so may end up doing some double posts etc to squeeze them all in :) Anyway, to today's topic.
I have often wondered if my health care team read my blog. They know that I have one and I have written the name down for them to check it out, but they have never mentioned whether they have actually checked it out. If they do then a big shout out to Dr. Greg, Leona and Lisa!
Things I wish they could see about my daily life with Type 1 diabetes. Mostly I would love them to see how I manage diabetes with all the activity I do. How much effort it takes to get the fuel and basal rates right for the different sports I participate in. My main sports, running, biking and swimming all do different things to my blood sugars and it can be quite the balancing act to get it right. If I am running or biking in the evening I have to start my preparation earlier in the day to ensure I don't have too much, or too little, insulin in my body. I think they would be happy to see that I check my sugars before, during and after and will adjust where necessary. I can often be seen wolfing back some blok shots mid-spin or run so that I can continue. I would like them to see that I push my physical boundary's and that it can be done with Type 1 diabetes.
I would want them to see how I really make an effort to be as healthy as possible. I test regularly, count my carbs the best I can, get good sleep, take care of my feet and eyes. I would like to see how the majority of the time I face the disease head on and don't let it get me down. When I attend my appointments and my health care team study my numbers and ask me questions about why I suffered a certain low or high, I would like them to see that sometimes I can pinpoint it but most of the time there is no reason. Diabetes can be crazy like that. I would like them to see how hard it can be to get through a low blood sugar, how I sweat and slur and shake and how much willpower it takes not to eat the entire contents of my fridge and cupboards (wow that sentence has a lot of and's in it, bad grammar!). I want them to wake up with me each and every night at 3:00am when my alarm goes off to check my blood sugars to make sure I am safe until morning. I want them to see how I take my disease very seriously and work damn hard at maintaining it.
There are definitely things I would not want them to see. I rarely change my lancet and wait until it is so dull I would have better luck biting my finger tips. I do not change my infusion site every three days as recommended. Heck I wait until I am down to the very last drop of insulin before I do, usually about every five days (does not seem to make a difference for me). Sometimes I even change the infusion set right before bed (however do set my alarm to check to make sure all is good). I do not really follow the 15 - 15 rule. I do treat my low blood sugars with roughly 15 grams of fast acting carbs but rarely do I check again 15 minutes later. If I suffer lows in the night I will treat and then just go back to sleep. Sometimes I just go ahead and eat a treat without caring what my numbers will do. I can adjust later.